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LIFE IN THE END ZONE: A discussion of topical issues for anyone concerned with the final phase of life by Muriel R. Gillick, MD
July 30, 2015
July 28, 2015
How Much Good Could the WHCOA Do if the WHCOA Could Do Good?
A few
weeks ago, I blogged about the upcoming White House Conference on Aging. This
once-a-decade event took place last week. What, if anything, did it accomplish?
It was a
modest affair, attended by a mere 200 invited delegates (though observed on
line by 600 “watch parties”) that was more of a highly scripted performance
than a platform for hashing out policy recommendations. This was no surprise,
as Congress never allocated funds to support the event, so that it took place
at all is something of a miracle. For all its limitations, it did accomplish
something. It was of symbolic
significance, a way for the White House to affirm that the health and
well-being of the older population are a concern for the entire society. It was
also a forum for presenting recommendations for what people outside the federal
government can do to address important public policy issues—given that Congress
refuses to do so.
The
Conference was of symbolic
significance: it was hosted by the White House and the President actually made
an appearance, addressing the attendees. And it turned to groups other than
Congress to implement policy. In particular, it turned to state government, to the
nursing home industry, and to the corporate world. State governments were exhorted to adopt 401K type savings plans
for older people—a corresponding initiative, incidentally, failed in Congress.
The nursing home industry will be
charged with implementing a lengthy set of new rules proposed by the Centers
for Medicare and Medicaid Services designed to improve quality of care in
nursing homes. This means the nursing homes will have to pay for the enhanced
training for nurses and nurses aides that the regulations would mandate as well
as infection control committees to monitor antibiotic use and a host of other
mandates. And corporations were given
shining examples of creative technological approaches to the problems of aging:
the ride-sharing service, Uber, detailed a new program that will offer older
people discounted or free rides and training in using its smart phone app;
Philips announced the creation of its “AgingWell Hub,” a collaboration with
caregivers, older adults, academics, and companies to identify new technologies and services
that promote successful aging.
All in
all, the Conference gave a boost to ongoing efforts in its four main topic
areas: healthy aging, long term services and supports, elder justice, and
retirement security. It was not an opportunity for brainstorming or for
developing bold, radical new ideas. But it was a pragmatic approach to a
pressing problem, undertaken with a paltry budget. And maybe, just maybe,
Congress will be moved to do more in the coming years. After all, the average
age of the current senators is 62, which means that before their term is over,
the majority will be eligible for Medicare.
July 13, 2015
What's Up, Doc?
Every week I scour the medical literature and the media in
search of something newsworthy to report about aging and old people. I discover and sometimes read all kinds of
reports—often I wonder whether these reports will have any effect at all or
whether they will collect dust in a file cabinet somewhere, though with the
internet, there probably aren’t even any physical copies of most of them.
There’s the annual report on dementia from the Alzheimer’s Association, there
are reports from the Institute of Medicine, surveys from the Pew Center,
research papers from AARP. I read and reported on white papers and position
papers (I never have known the difference) from organizations such as the
FrameWorks Institute and from the British Geriatrics Society. I’ve blogged
about important books, not so much on best sellers such as Atul Gawande’s
“Being Mortal” as on equally important but less celebrated works such as Angelo
Volandes’ “The Conversation” and Sharon Kaufman’s “Ordinary Medicine.” And then
there are the medical journals. So it occurred to me to ask what journals
publish articles about aging that I think are of interest to both the geriatrician
and the general reader?
Just for fun, I looked at what recent articles were cited in
either my blog, Life in the End Zone, or in the one other blog that I read
regularly, GeriPal, which stands for Geriatrics and Palliative care and is run
and largely written by Alex Smith and Eric Widera, both physicians. What
appeared in these two blogs reflected my biases and those of my colleagues at
GeriPal. A little introspection about my blog reveals that I try to avoid
discussing articles that are getting a lot of publicity already, pieces that
have already made it into every leading newspaper unless, of course, I have a dissenting view on
those studies. I like looking for interesting sounding articles in journals
that most doctors don’t read and for reports on relevant topics that were
ignored by the mainstream press. As to GeriPal, the authors describe the blog
this way: “It is a forum
for discourse, recent news and research, and freethinking commentary. Our
objectives are: 1) to create an online community of interdisciplinary providers
interested in geriatrics or palliative care; 2) to provide an open forum for
the exchange of ideas and disruptive commentary that changes clinical practice
and health care policy; and 3) to change the world.” Here’s what I found.
In the
six months since the beginning of 2015, GeriPal has posted clinical vignettes
and personal ruminations along with summaries and commentaries about new
research findings. I counted 13 discussions of articles—11 of them newly
published studies. Of these 11, 6 appeared in JAMA Internal Medicine. The
others were from 5 different journals: the CDC’s Morbidity and Mortality
Report, the Journal of Clinical Oncology, the Journal of General Internal
Medicine, and the Gerontologist.
During
the same 6 months, I discussed 12 newly published articles (along with various
books and reports). My most cited journals were JAMA Internal Medicine (same as
GeriPal, but by and large, different articles), with 3 studies quoted, and the
New England Journal of Medicine (another 3). The remainder were from 6
different sources: the Gerontologist, the British Medical Journal, the Journal
of Medical Ethics, JAMA Neurology, Aging Cell, and Health Affairs.
Are
there any conclusions from all this? If you are interested in issues affecting
the older population and you only have time to look at only one medical
journal, you should concentrate on JAMA Internal Medicine. (Remember that while
I only discussed 3 articles from this journal, I deliberately avoided focusing
on articles that GeriPal had already referenced.) All told, 9/24 articles were
from this one journal. Not a single article from the Journal of the American
Geriatrics Society, the flagship journal of the leading American professional
society for geriatricians, made it into the list.
Now this
is a rather eccentric perspective. Remember that I didn’t survey all articles
on geriatric topics and then decide in some systematic way which were most
important. All I’m asking is what articles happen to have been chosen by one or
both of two blogs, one of which is my own, over the past six months. Just
thought you might be interested. And kudos to JAMA Internal Medicine!
July 12, 2015
Get Old? Who, Me?
Yes, Virginia, there will be
a White House Conference on Aging (WHCOA) this year—this July 13. Well, sort of.
Congress never re-authorized the Older Americans Act, which provides the
statutory framework for the conference. That means no financing and no legislative
backing. So just as he’s done with immigration reform, raising the minimum
wage, and new automotive fuel standards, President Obama is going it alone. He’s
using his limited discretionary funds to host a one-day event at the White
House. No delegates traveling from around the country, no opportunity for
networking, and probably no major new initiatives. Just a handful of invited
speakers and a few webinars with interested individuals calling in from their
“watch party” to ask questions.
It’s innovative, capitalizing on technology, social
media, and the internet. It’s efficient—no air travel or hotel reservations
necessary. It will shine a light on four important areas: healthy aging, long
term supports and services, elder justice, and retirement security. The
Gerontologist published papers on each of these areas in a special April issue. These papers will serve as
the major input, and probably also the output, of the conference. They are
thoughtful, articulate articles that collectively offer a vision for geriatric
health policy.
It would be small-minded to be critical of what’s not on
the WHCOA agenda, given the limited resources available for the conference.
Dementia, the single greatest threat to quality of life in advanced age and one
of the chief drivers of expensive medical care, didn’t make the cut—but then
again the White House already announced the BRAIN initiative (Brain Research
through Advancing Innovative Neurotechnologies), an ambitious public/private
cooperative enterprise intended to treat, support, and perhaps one day cure,
Alzheimer’s disease. Technology in old age—from assistive devices to smart
houses to robots—isn’t on the docket. But the very existence of the conference
is an impressive accomplishment. It shows ingenuity, imagination, and
determination in light of the congressional just-say-no attitude.
Rather than regretting what the WHCOA is not, we should
celebrate what it is. It is a testimonial to the recognition that aging is
important, that old people matter, and that the US has a responsibility to
promote a society to conducive to leading a fulfilling, meaningful life for all
our citizens. Congress deserves public castigation for its failure to
re-authorize the Older Americans Act which, in addition to providing support
for WHCOA also subsidizes home delivered meals, adult day care, congregate
meals and caregiver support programs. The average age of the members of the House of Representatives in the 114th Congress is 57. The average
age of members of the Senate is 61—which means that before their term expires, many will have reached the age of Medicare eligibility. Dissing aging
reveals yet another truth about our do-nothing Congress. It is engaged in a massive denial of aging.
July 08, 2015
July 05, 2015
Shocking News
Much has been written lately about over-treatment of older
patients. Only rarely does anyone suggest that older patients are getting too little treatment, but a new study in JAMA does just that. The reality isn't quite so clear.
The treatment is the implantable cardioverter defibrillator
(ICD) and the patients are people over the age of 65 who have had a heart
attack and are found afterwards to have a weak heart (defined as an ejection
fraction less or equal to 35%). These patients are at risk of sudden death, of
an irregular heart rhythm such as ventricular tachycardia, and the ICD is
designed to deliver an electric shock if that happens, effectively bringing the patients back from death. By looking at the National Cardiovascular Data
Registry, which keeps track of heart attack patients, the authors of the
article found that only 8.1% of “eligible” patients actually received an ICD.
As a result, they claim, the 92% of patients who didn’t get an ICD were more
likely to die than their counterparts who did.
This is a surprising finding in light of the persuasive and
cogent argument made by Sharon Kaufman in her recent book, Ordinary Medicine: Extraordinary Treatments, Longer Lives, and Where To
Draw The Line. Kaufman makes the case that many high
tech treatments come to be seen by physicians and patients as normal and
necessary once Medicare agrees to pay for them. The end result for many
marginally beneficial, burdensome, and expensive treatments, including the ICD, is that patients just can’t say no. If that's true, why are so few
older people getting an ICD?
Now it wouldn't be the first time that ageism or
misinformation prevented older people from getting beneficial treatment. Many
years ago, patients who were over a certain age were precluded from receiving
clot-busting drugs (thrombolytic therapy) because it was widely assumed that in older age groups, the risks outweighed the benefits. It turned out that
clot-busting drugs were actually more beneficial in older patients, basically
because their heart disease tended to be severe which meant they stood to gain a great deal from treatment. Elevated systolic blood pressure was likewise once assumed to
be normal in the geriatric population, or even desirable in order to improve blood flow to
the brain. Studies eventually showed that elevated systolic blood pressure,
even in older patients, predisposed to stroke and other unfortunate outcomes,
and warranted treatment—though the recommendations about just how much blood
pressure should be lowered have evolved over time. Is the ICD implantation rate
just another case of bias or ignorance at work?
Dr. Robert Hauser of the Minnesota Heart Institute, writing
an editorial published alongside this article, blames our fragmented health care system. He speculates that primary care
physicians may not realize that their patients were supposed to get an ICD. The fact that there's supposed to be a 40-day waiting period between the onset of the heart attack and implantation of the ICD contributes to the problem. Hauser suggests that the primary care physician is so frazzled and overburdened that he is apt to neglect to send his patient to a cardiologist. Is
this the explanation?
It can’t be the whole story. While patients who saw
a cardiologist after hospital discharge were more likely to wind up with an ICD
than patients who didn’t, only 30% of the patients who saw a cardiologist had
an ICD implanted. Recall that 100% of them were, technically speaking,
“candidates” for an ICD. So what else is going on?
Hauser hints at another explanation: “It is possible that
some older patients may refuse ICD treatment for personal reasons or because
comorbidities such as endstage kidney disease or advanced frailty were
considered in the decision regarding ICD implantation.” He doesn't accept this
explanation as sufficient, rightly recognizing that patients are very likely to
accept whatever technological intervention their physician recommends and that
shared decision-making, if it takes place at all, is apt to reflect the
physician’s preferences as well as the patient’s. So the problem, if it is a
problem, must lie with doctors, too. Physicians are not
systematically and emphatically recommending ICD implantation to their older
patients. Even the most technologically sophisticated academic medical centers
only implanted ICDs in 16% of their eligible older patients. But is this a
problem that needs fixing, like under-treatment of heart attacks with clot
busters and inadequate treatment of high blood pressure in the past?
Dr. Hauser believes
it is, saying “even though the use of ICD for primary prevention may not seem
to make as much sense for an 80 year old patient as it does for a patient in
his 50s or 60s, an older patient at risk for sudden cardiac death should have
the same opportunity to choose potentially lifesaving therapy.” But the benefits
of ICD in those over 80 are far from clear. The studies include very few people in this age group. What
data there is indicates that there is little if any survival benefit. Moreover, ICDs implanted in older people fire erroneously half the time. That means they deliver a very unpleasant electric shock to the
hapless patient. In addition, if the ICD does work as intended, what that means is the abolition of sudden death.
Maybe, just maybe, the low rate of ICD implantation in older people is a refreshing instance of massive civil disobedience—of both patients and doctors refusing to abide by prevailing clinical guidelines. We all have to die of something. An ICD virtually guarantees that the something will involve a protracted period of decline and suffering. If you had to choose between cancer, Alzheimer’s disease, and sudden death, which would you pick?
Maybe, just maybe, the low rate of ICD implantation in older people is a refreshing instance of massive civil disobedience—of both patients and doctors refusing to abide by prevailing clinical guidelines. We all have to die of something. An ICD virtually guarantees that the something will involve a protracted period of decline and suffering. If you had to choose between cancer, Alzheimer’s disease, and sudden death, which would you pick?